Autism is a challenging – and more and more
frequently diagnosed – condition. In fact, as of 2018, the CDC estimates its
prevalence as 1 in 44 children. While we might think of a child with autism as
being non-verbal and exhibiting hand flapping and other odd behaviors, he could
also look like any other child yet be struggling with many life skills. Children
diagnosed with autism spectrum disorder, or ASD, differ widely. What they have
in common are deficits in communication and social interaction, and 2) restricted, repetitive
behaviors, interests, or activities.
Parents who learn
that their child has autism are faced with a myriad of treatment choices.
Dolphin therapy? Floor therapy? Sunrise therapy? Or plain old ABA (applied
behavior analysis) therapy? The decision is truly daunting, but it is precisely
this decision that will make all the difference in an autistic child’s
progress. While new treatments abound, and some of them gain popularity on
Facebook parenting groups, there is just one therapy that is highly tested and
considered the most effective autism
treatment. Unfortunately, it has somehow gotten a bad name lately – mostly in
the frum community – a point that
deserves study. That system of treatment is ABA: applied behavioral analysis.
What Is ABA?
Applied
behavior analysis is a type of behavioral therapy that teaches skills and
expected behavior by using reinforcement. In the past, it also used punishment. Perhaps that is
why, when some of us hear the term ABA, we think of electric shock treatment
and repetitive practice for reward, like Pavlovian dogs. And we cringe. Let’s
revisit the 70-year history of ABA and hear the honest reflections of a leader
in the field today, Dr. Ronit Molko, Ph.D, BCBA-D:
“To understand the
evolution of ABA,” says Dr. Molko, “one needs to understand the history. It is
based on the behaviorist psychology of Skinner and others in the early 20th
century, and by the 1960s, the application of ABA was rigid and
unnatural. Children were required to sit through multiple, repetitive drills to
learn skills and sequences, and the number of hours of intervention were
exhausting. The popularization of Skinner’s methodology created a mindset among
some parents and providers that intervention must be highly structured, rigid,
adult-driven, and sometimes, aversive, meaning treatment could involve
unpleasant techniques to alter maladaptive behavior.
“ABA has evolved
into a much more naturalistic, engaging, play-based, and child-directed form of
intervention,” says Dr. Molko. “In natural environment
teaching (NET), for instance,
treatment takes place within the ordinary routines of daily living, occurring
during mealtimes, playtime, bath time, community outings (like a trip to the
grocery store), and other natural parts of a child’s day. This sort of
real-life teaching differs extensively from the overly formal, clinical
settings of the past.”
Furthermore, Dr. Molko
adds, the market for autism treatment has grown exponentially, which has
unfortunately led to misusing the label of ABA for treatments that “do not meet
the standards and definitions of ABA.” In other words, giving ABA a bad name
may not be in reference to ABA at all.
Dr. Molko concludes, “It’s
up to us, as a profession, to honor and respect each client’s and family’s
wishes and values, and to discuss issues related to things like dignity,
individuality, and self-expression. It’s up to us to honor selfhood.”[1]
Blue Balloon
Clearly, these
thoughts do not sound like the words of an uncaring, regimented clinician. Now
let’s peek in at a major early intervention center in Owings Mills, Blue
Balloon.
In the morning I
spent touring and interviewing Mrs. Miriam Newmark, BCBA, clinical director, I
did not see one candy offered as a reward. Mrs. Newmark explained, as per Dr.
Molko’s brief history above, that rigidly drilling children and rewarding them
with candies is the old ABA. Her center uses natural rewards, such as praise
and, for very young children, hugs and kisses – which I repeatedly witnessed. “The
key to success is to connect with the child and earn his trust,” says Mrs.
Newmark. “The first part of a treatment plan, therefore, is to pair oneself
with the child through positive reinforcement so that the child looks forward
to working with the therapist.”
Parents attend an
evening or early morning ABA session with their child once a week so that they
can carry over the same approach at home. Additionally, there is no such thing
as punishment. In terms of respecting the culture of each family, Mrs. Newmark
directs her staff to “determine individually effective treatment per child with
the goal of becoming more independent than before.” In this light, only
socially valid behaviors, not the therapist’s beliefs, are addressed.
Furthermore, the emphasis on repetition has vanished as the directive is now to
“mix and vary tasks all the time.”
This approach is
not unique to Blue Balloon. The other centers in our community as well as the
many centers in the tri-state area are all up to date. The majority of Blue Balloon’s
clients are from the wider Baltimore area, and although it does
serve local frum schools as well
as families through home-based therapy, some of us in the frum community may not have realized the
benefits of the modified ABA of the 21st century. The rare account
of incompetence has gained credence among us through the social media we have
learned to trust more than our doctors or degree-granting institutions.
Essential
Information
Parents of newly
diagnosed children find themselves lost in a vortex of powerful emotions,
facing an uncertain future and a formidable learning curve. One very helpful
resource is the website of the Association for Science in Autism Treatment,
asatonline.org, which contains a goldmine of information and contacts.[2]
Parents will benefit greatly from searching a link here in which hundreds of
therapies are researched and listed according to three categories: 1) studied
and found ineffective, 2) studied and found effective, and 3) insufficiently
studied, therefore lacking any conclusive evidence.
For instance, Floor Time, a therapy the frum community
is excited about as the future of autism therapy, is found in the category of
insufficient evidence. Insurance will not cover this or other therapies unless
research has shown that the progress lasts. For this reason, ABA centers submit
regular and detailed paperwork to such companies to document their treatment’s
effectiveness. Among public school systems, physicians, insurance companies,
and researchers, ABA is considered the gold standard of treatment for
autism.
A key factor in how present-day ABA maintains such high standards
is found in its training. An MA in ABA is required, which includes 2,000 hours
of supervision and a licensing exam to become a supervisor. Those studying for
this goal are termed RBT, or registered behavior technicians, and work under a
supervisor.
The goal of this article is to encourage parents who are perplexed
by the many purported therapies for autism to turn to your doctor or peruse asatonline.org to find the professional who will help you. Visit an ABA
center to see for yourself. We hear so much about the dangers of smartphones
and social media. I sadly venture to say that this also includes the baseless
distrust of the “world out there” that brings us to choose a therapy for our
precious children from a post on a Facebook group.
[1] See https://learnbehavioral.com/blog/understanding-the-evolution-of-aba.
[2] Here
parents of newly diagnosed children will find extensive direction beginning
with this link: https://asatonline.org/research-treatment/resources/child-diagnosed/